But the problem with resilience is that it's not always there. Sometimes there's a tiny crack that can be infiltrated, like bacteria slipping into a cell, and the whole organism is damaged. And that's what happened for a few hours yesterday.
"I'm giving myself the afternoon off," I called to my mother as I packed a backpack with a towel, sunscreen, headphones, and my biology textbook.
"Good, enjoy it!"
Ed had been a mess all morning. One of the side effects from both TBIs and end-stage Parkinson's is inappropriate sexual conduct. Every so often, he'll have an hour of tongue-wagging and awkward pick-up lines, and we laugh it off. I always head to laughter and clever one-liners, because the sadness of the reality is just too much for anyone.
But yesterday, he was relentless in his desire to bang out somebody, anybody. And it was very difficult to see someone who used to be so modest be so crude with his language and gestures. And the tiny cracks in my well-preserved facade began to open, so I GTFO and went to the beach.
(For the non-texters: GTFO means "Got The Fuck Out".)
In the early recovery days, when we thought he might come back, even a little.
I thought that when I came back, my adventure-related endorphins would carry me through anything. And apparently, Ed was well-behaved for the few hours I was gone. But somewhere between his afternoon and early evening meds, something kicked into him and there he was, inappropriate as ever.
And there I was, bottling everything.
And later, there our aide was, this sweet older lady, who didn't even have a chance to take off her shoes before I was in front of her, warning her, using the last fraction of composure I had to tell her that these horrible things were not indicative of who he was or how he ever behaved, that this man was a decent human being who was not..who was just not there anymore. And how I was reacting to my own abusive childhood, one he wasn't a part of, and had no way to stop.
And then, like a radically conservative preacher getting invited to a gay wedding, I lost it. I went to my mother's room, and just exploded emotion everywhere.
While feeling and observing at the same time, I knew what I was saying, how I was reacting to my mother's attempt to soothe me was hurting her as well as myself. I knew this outburst didn't help her recovery. But it was there, and she was, not a patient or cancer survivor, but a mother, trying to bandage my hurt.
Sometimes, the only solution is wine and laying outside in the grass. And more wine.
The challenging childhood I had has made me a ridiculously strong person. And I realized last night that to be ridiculously strong, you have to be able to make yourself ridiculously human.
"I don't want kind robots in my life," she said.
"Not unless they can do other things, like cuddle and make omelets."
"...Give me your wine."
Half a liver makes her a cheap date!
It's not (just) the things he said. It's the continuous decline. As my mother's health ascends, his seems to be plummeting. And as tragic as Alison's accident was, at least it was over in an instant. I went from having a sister to not having a sister on impact. I am slowly watching my father die, and it's one of the most inhumane things I've ever experienced.
How do you grieve for someone that's still breathing and conscious?
UGHHHHH THE FEELS MAKE THEM STOP
OK, to make sure we're not all going to be miserable, let's play a game: in the comments, write your best memory of your people. They don't have to be your parents. I'll start.
Ed used to play Santa Claus (I mean, just look at him in that wedding picture). He would be the talk of the town the entire month of December. One year, he went to a salon and had his beard bleached. It was whiter than you could believe, but he almost choked on the fumes. Still, any time we went anywhere, kids would stare at him, slack-jawed that Santa was shopping at Publix. And he'd wink, tap his nose, and sometimes - if it was later in the month and he had worn the same pants to work - he'd pull a mini candy cane from his pocket, and literally make this kid's life. It was fun being Santa's kid.




















.jpg)







.jpg)


